Jessica and Jenn are friends that share a common bond. They each have a child with a rare disease called FPIES (Food Protein Induced Entrocolitis Syndrome). FPIES is a type of food allergy affecting the gastrointestinal tract. Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be immediate and do not show up on standard allergy tests. Jessica wrote to us specifically about Jenn’s daughter, Sarah. She said, “Sarah is 11 years old and has FPIES just like my boy Wyatt. She is also on the most severe end of the spectrum of this disease. Basically, this girl lives off of about 8 ingredients and a slew of medicine to survive. You see, when kids like my Wyatt Boy, and sweet Sarah eat food, they have vomit to shock reactions that are life threatening and very scary. They often have poor growth, and many other issues that are results of this disease. There is no cure, no reasoning to why it’s happening, and very few doctors who have even heard of it.” Jessica told us […]
About a month ago, a request came into our inbox from Camp PossAbility and quickly captured our hearts. From the Bradford Woods of Martinsville, Indiana, Camp PossAbility serves young adults with physical disabilities, ages 18 to 35. All campers have a physical impairment that requires a wheelchair for mobility. The camp’s mission is to give these young adults a safe place to relax and spend time with friends without having to worry about adapting to the world around them. In 2016, Camp PossAbility’s 2nd year, campers and volunteers attended from 10 different states. The camp hopes to continue to grow so that more and more young people find safety, healing, and friendship with others who best understand what they are going through. They hope to further create an environment for their campers to feel comfortable and empowered to realize their potential. So far, they have seen great results. But like many newer organizations, Camp PossAbility could benefit from a boost. Lauren, the camp’s CEO, works entirely on her own time, as do all staff and volunteers. They are a dedicated group working together to make Camp PossAbility the best experience possible for their campers. Lauren told us that […]
This year, we raised $275,000 for US homeless youth organizations. Thank you for warming and lighting the world, Love Warriors, for helping take care of homeless youth here in America. We feel this potential for us there. These young people filled with hope and talent and promise — these artists and geniuses and poets and athletes and future activists living on the streets. Nope. We NEED them. So we’ve got to help. Together, we are supporting amazing programs like Youth Villages’ LifeSet. Entering adulthood, choices about education, employment, relationships, and health can be overwhelming. Since 1999, LifeSet has helped provide the most vulnerable young people with the support they need to realize their own amazing potential. The program has one simple tenet: We believe in the potential of every single kid to become an incredible adult. A successful transition to adulthood includes maintaining stable and suitable housing, remaining free from legal involvement, participating in an educational/vocational program and developing the life skills necessary to become a responsible citizen. Youth Villages’ LifeSet program works not only with former foster youth and other vulnerable young people but also with their support systems to help ensure a more […]
I know that everything is scary right now. I just keep reminding myself that the two most often repeated phrases in my holy text are DO NOT BE AFRAID and REMEMBER. Our human family is dismembered—like a scattered puzzle. We must re-member. We must rise above our fear and come together. Even when we are afraid. We all have fear. But fear does not have to be where we set up camp and live. We can allow fear to become but a flicker. We can feel it, and then rise above it again and again. There is a place above our fear we can keep returning to again and again and that place is love. Fear is real but it is not the boss of us. Love is the boss of us. Last Wednesday, in six hours, this incredible community fulfilled the wishes of 700 families through our annual Together Rising Holiday Hands effort. This year, these families will walk around feeling held. Instead of turning the news back on tonight, sit down with your families and read some of the Holiday Hands needs you met for strangers. You’ve got two wolves fighting inside of you: Love and […]
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